Had my office visit with the pulm today. It was quite nice as he had cancelled all but myself and 2 other patients so we had plenty of time to chat. I know him quite well from work too so that helps a ton. He had lots of good things to say.
We went over all [...]
I came across these 101 in 1001 lists on others’ blogs and thought they were a neat idea. So I started one of my own. It’s actually a hard thing to come up with 101 things to get done!! The reasons for doing the list etc are on the page that was created for the [...]
The latest battery of testing is done and I have results:
The single fiber EMG was completely normal. According to the neurophysiologist that did it this definatively rules out MG along with the fact that my blood work for MG was normal and so was my regular EMG. He had no other suggestions for what [...]
My upcoming schedule is:
Single fiber EMG on Thursday 9/18 (will be done by a muscular dystrophy specialist)
High resolution chest CT on 9/19
Appt with pulmonologist on 9/26
Hopefully at least one of these will be able to shed some light on what is going on with me. I’m ready for a diagnosis. Bad or good, I’m [...]
After reading some of the heavy topics on Without Wax, a blog I read daily, I knew I needed to go and visit the “God store” as I call it. It is really just Cornerstone Bookstore, a Christian bookstore. I was feeling the call to learn to be better at prayer so off I went [...]
Just when I was starting to think that maybe this was getting better I had a bad night again last night. My leg weakness had been getting progressively better and most of my weakness had been limited to my arms. I’m now having trouble doing things like washing my hair, stirring things, typing long things, [...]
Yesterday I had my next eye appointment with the neuro-ophtamologist. I had seen him 4 months ago when the double vision started up again. I had also seen him in 1999 when I had my first bout of double vision. He had some good things to say.
First off, he says he would bet money on [...]
I wanted to introduce those that read my blog to my newest friend that I have met on the blogosphere. His name is Pete Wilson and he’s the pastor at Cross Point Church in Nashville. I’ve been following his blog for some time now and I wanted to introduce it to others. It has quickly [...]
Had my pulmonary function tests done and the results are………………………………..you guessed it NORMAL. The therapist said I have wonderful lungs even!! Though my pulmonologist did say he thought they would be so I’m not to terribly surprised at this one. I just recalled his office about when I actually see him in the office but [...]
When all this muscle weakness got to the point it’s at now it was mostly my legs that bothered me. I had days where I had trouble walking and climbing stairs are pretty much a thing of the past except the ones I have to do in my house. The other symptoms are pretty mild although [...]
