It’s not meningitis!!

It’s been awhile since I’ve blogged mostly because I’ve been sick for 6 days now.  And really it’s been almost 3 weeks in total.  I had a bug for a few days where I had a fever, chills, headache and muscle aches then got better from that but coughed like crazy for about a week.  Figured it was just the bronchitis that the kids had.  Got better and moved on……..or so I thought!

Then my Mom came to visit for a few days and we had a great time so no blogging then either.  

The day after she left I awoke again with the same symptoms:  fever, chills, headache, muscle aches.  This time much worse though.  Today was the 6th day of it and this morning I woke with a very stiff neck that I could hardly move.  So off to the ER for me.  

There they did some blood work and a CT scan of my head which were fine.  The next recommendation was a spinal tap which I wasn’t real fond of but being a nurse I knew I had meningitis symptoms and it was necessary.  It wasn’t the most pleasant thing I have done but luckily it was negative too meaning I don’t have meningitis!!  Yipee!!

Now I’m home recovering and hoping that this nasty virus they say I have will quickly pass and I can get back to myself soon.

Neurologist appointment update

I don’t think I ever updated about my most recent appointment with my neuro.  It was on Sept 30.  I had a sick kiddo at home and almost forgot the appt!!  Luckily I had programmed it into my phone for an hour before to alarm or I would have been a no show!!

Anyway, we went over all my results and he is pretty adamant that I don’t have MG.  They have all said that negative antibodies, negative RNS/EMG/SFEMG = a 95% chance that you don’t have MG.  

He was willing to go along with it being some kind of “viral syndrome” like the other docs have said.  They just love to blame things they don’t know on a virus.  Grrr!  I’d love for it to be that too but really I just want to feel better.

About how I’m feeling:  I was starting to feel better and I’m still better than I was at my most low with this but I’m not myself at all.  I’m still wanting to sleep as much as possible, I’ve had to wear my glasses the past few nights I’ve been working to shave off the double vision and the muscle weakness is still there just not as bad.  I get worn out so easily.  At least at this point it’s not so bad that I cannot do things with my kids like before so I guess I can live with it where it is.  It just would be nice to feel like myself again.  The SOB is also better but still there.  The inhalers the pulm gave me aren’t doing anything positive.  I used the rescue inhaler the other day when I was SOB and it helped a tad but then for the next 4 hours I felt horrible.  Jittery and anxious.  

I’m taking comfort in my Lord, who I know has me on this path for a reason.  I just wish He would show me why soon.  I got an email the other day with Saint Theresa’s prayer on it and it gives me comfort in this trying time.  This is it:  

Saint Theresa’s Prayer 

May today there be peace within. 

May you trust God that you are exactly where you 

are meant to be. 

May you not forget the infinite 

possibilities that are born of faith. 

May you use those gifts that you have received, 

and pass on the love that has been given to you. 

May you be content knowing you are a child of God.   

Let this presence settle into your bones, 

and allow your soul the freedom to sing, 

dance, praise and love. 

It is there for each and every one of us.