Now I’m really confused

All this iron stuff is really confusing me.  I have my endocrinologist who is saying that my iron being so low is not good.  And that makes total sense to me.  You need iron to make blood etc.  So not having much cannot be good, right?  Plus I don’t feel good.  That is why I started this blog in the first place.  Because I had all these crazy symptoms:  fatigue, muscle weakness, shortness of breath with any exertion, difficulty swallowing.  And for those I had this HUGE work up as everyone thought I had myasthenia gravis.  But that was all negative and no one could figure out what was wrong with me.  Then the symptoms got better for a bit but then they have come back.  Not as bad but they are back.  Also back is the double vision.  It’s back with a vengeance along with the eye movement disorder that the eye doc had I think called superior oblique myokyma.  I had always thought the double vision was bad but the movement disorder is so much worse.  And they are here together making it double awful. 

My endocrinologist tells me based on my results that I need more iron but that she isn’t an iron expert and to call my primary doctor.  So I do and the short version of that story is that she tells me that since I’m not anemic and I’m a female who still gets my menses this level of iron deficiency is normal.  WHAT?????   Along with how I feel it’s normal???  Who do I believe?

So I scour the Internet and come across this article.  And it pretty much describes me and how I feel.  And it talks about how unrecognized this problem of latent iron deficiency is.  Latent meaning that you are iron deficient but NOT anemic.  So I call the primary doctor again and basically get the same response.  Take a multivitamin with iron if it will make you feel better but you aren’t anemic so you don’t need to worry.

So, now what do I do?  Ahhhhhhh!