Drum roll please……………..Celiac results

And they are……………………………………NEGATIVE.  Told ya in the last post didn’t I????  I knew they would be too.  Nothing is ever easily explained with me.  When I started this medical mystery journey they were looking for myasthenia gravis because of my symptoms and it turned out to be iron deficiency.  Yeah they are related…not!  No one thought to [...]

Testing for Celiac

Thanks to Regina (who has been a wonderful resource for my commentors….thanks Regina!!!)  I called my endocrinologist before my latest round of lab work and asked her about the connection between Celiac disease and the other problems I have been suffering from.  I told her about the:

Iron deficiency

Vitamin D deficiency

Autoimmune thyroid disorder (Grave’s)

Generalized joint pain

Vague [...]

Thyroid and Iron updates

I missed my last thyroid appt (oops, forgot and overslept!!).  Actually that isn’t like me at all but my 4 year old son had had open heart surgery the week before so my mind was in another place.  I got the appt rescheduled for a month later but knew something was up with my thyroid.  [...]

My thyroid is doing strange things & iron update

I went a week ago and had my pre-thyroid appointment bloodwork done.  This included my newest iron studies that were done after taking the Rx strength iron for the last 3 months.  Being the impatient patient that I am I was unwilling to wait the week until my appointment so I called my endocrinologist.  She [...]

Results are in

The latest battery of testing is done and I have results:  

The single fiber EMG was completely normal.  According to the neurophysiologist that did it this definatively rules out MG along with the fact that my blood work for MG was normal and so was my regular EMG.  He had no other suggestions for what [...]

Happy stinking birthday to me!!

So yesterday was my birthday.  I’m 32 now!!  A major milestone huh!!  In all seriousness it was not a great day.  It started off with me feeling blah like usual.  But I was at least in an upbeat mood.  My husband and I were on our way to lunch for me (without the kids too!!!) [...]

Still no answers

I had my nerve conduction study and EMG yesterday and am still no closer to a diagnosis.  Also got the results of the anti-MUSK antibodies bloodwork which was negative.  This doesn’t mean I don’t have myasthenia gravis (MG) but is leaning towards that NOT being the diagnosis. 
The doc who did the nerve conduction and EMG [...]

A personal connection

Tonight I’m taking care of a patient with myasthenia gravis (MG).  I especially took her in my assignment to be able to talk to her about the disease and how it has affected her life etc.  She is very nice and has a kind heart so I shared with her my recent struggles and symptoms.  [...]

Having a rough night

Been having a rough few days actually.  I had gone on vacation with my family and felt pretty good.  Though I did notice that I get tired pretty easily.  Even my husband, who doesn’t usually notice things like that, noticed.
Now I have a cold and it’s kicking my butt.  Summer colds are the worst anyway [...]

Next step in the process done

Today I am one step closer to a diagnosis for all these symptoms.  I had some more bloodwork done.  I had had some done awhile ago that looked for anti-Ach antibodies which are sometimes positive in MG.  They were negative in me.  If you have lots of MG symptoms and your anti-Ach are neg then [...]