All this iron stuff is really confusing me. I have my endocrinologist who is saying that my iron being so low is not good. And that makes total sense to me. You need iron to make blood etc. So not having much cannot be good, right? Plus I don’t feel good. That is why I [...]
Entries Tagged as ‘possible myasthenia gravis’
January 8, 2009
I have a diagnosis finally!
I had a follow up appointment with my endocrinologist today for my hyperthyroidism. We were discussing how my symptoms had come back. The double vision, shortness of breath with any exertion, muscle weakness, etc. See this post for more on that. Luckily it’s not nearly as bad as it was when I started this blog.
During the appointment [...]
October 8, 2008
Neurologist appointment update
I don’t think I ever updated about my most recent appointment with my neuro. It was on Sept 30. I had a sick kiddo at home and almost forgot the appt!! Luckily I had programmed it into my phone for an hour before to alarm or I would have been a no show!!
Anyway, we [...]
September 21, 2008
Results are in
The latest battery of testing is done and I have results:
The single fiber EMG was completely normal. According to the neurophysiologist that did it this definatively rules out MG along with the fact that my blood work for MG was normal and so was my regular EMG. He had no other suggestions for what [...]
September 5, 2008
Without wax and feeling some peace…finally
I wanted to introduce those that read my blog to my newest friend that I have met on the blogosphere. His name is Pete Wilson and he’s the pastor at Cross Point Church in Nashville. I’ve been following his blog for some time now and I wanted to introduce it to others. It has quickly [...]
September 3, 2008
Pulmonary Function Tests done
Had my pulmonary function tests done and the results are………………………………..you guessed it NORMAL. The therapist said I have wonderful lungs even!! Though my pulmonologist did say he thought they would be so I’m not to terribly surprised at this one. I just recalled his office about when I actually see him in the office but [...]
September 2, 2008
A first for me
When all this muscle weakness got to the point it’s at now it was mostly my legs that bothered me. I had days where I had trouble walking and climbing stairs are pretty much a thing of the past except the ones I have to do in my house. The other symptoms are pretty mild although [...]
September 2, 2008
False Hope
I just had the last 4 nights off and while the first one off is always a recovery day and kinda bad the second one is usually pretty good. Probably because I sleep about 12 hours the night before to catch up!! But then I’m so rested that next day that I feel great. Unfortunately [...]
August 29, 2008
Mystery diagnosis
I feel like I’m living in an episode of mystery diagnosis. You know, that show on the discovery health channel? My life is really beginning to resemble it in a big way.
I had my appt with my neuro yesterday. He is great. He had lots of good info but no real answers unfortunately. He says [...]
August 27, 2008
My big boy is 5!!
My big boy turned 5 today and started kindergarten!! I’m so proud of him. He did so well getting on the school bus and going to school for the first time. He got to bring cupcakes to his class for his birthday so he was extra excited about that!
I cannot believe that I have a [...]
