And they are……………………………………NEGATIVE. Told ya in the last post didn’t I???? I knew they would be too. Nothing is ever easily explained with me. When I started this medical mystery journey they were looking for myasthenia gravis because of my symptoms and it turned out to be iron deficiency. Yeah they are related…not! No one thought to [...]
Entries Tagged as ‘undiagnosed’
December 10, 2009
The Plan
Had my appt with the endocrinologist today. My TSH is still down. 0.27 this time. My T4 is down too. It sometimes is but not always. Not surprising they are down since I am still having symptoms. We talked of going on anti-thyroid meds, but she wants me to wait a bit longer and try to get [...]
December 2, 2009
Testing for Celiac
Thanks to Regina (who has been a wonderful resource for my commentors….thanks Regina!!!) I called my endocrinologist before my latest round of lab work and asked her about the connection between Celiac disease and the other problems I have been suffering from. I told her about the:
Iron deficiency
Vitamin D deficiency
Autoimmune thyroid disorder (Grave’s)
Generalized joint pain
Vague [...]
January 8, 2009
I have a diagnosis finally!
I had a follow up appointment with my endocrinologist today for my hyperthyroidism. We were discussing how my symptoms had come back. The double vision, shortness of breath with any exertion, muscle weakness, etc. See this post for more on that. Luckily it’s not nearly as bad as it was when I started this blog.
During the appointment [...]
October 8, 2008
Neurologist appointment update
I don’t think I ever updated about my most recent appointment with my neuro. It was on Sept 30. I had a sick kiddo at home and almost forgot the appt!! Luckily I had programmed it into my phone for an hour before to alarm or I would have been a no show!!
Anyway, we [...]
September 26, 2008
Pulmonologist visit
Had my office visit with the pulm today. It was quite nice as he had cancelled all but myself and 2 other patients so we had plenty of time to chat. I know him quite well from work too so that helps a ton. He had lots of good things to say.
We went over all [...]
September 21, 2008
Results are in
The latest battery of testing is done and I have results:
The single fiber EMG was completely normal. According to the neurophysiologist that did it this definatively rules out MG along with the fact that my blood work for MG was normal and so was my regular EMG. He had no other suggestions for what [...]
September 16, 2008
Upcoming tests
My upcoming schedule is:
Single fiber EMG on Thursday 9/18 (will be done by a muscular dystrophy specialist)
High resolution chest CT on 9/19
Appt with pulmonologist on 9/26
Hopefully at least one of these will be able to shed some light on what is going on with me. I’m ready for a diagnosis. Bad or good, I’m [...]
September 12, 2008
A sign sent
After reading some of the heavy topics on Without Wax, a blog I read daily, I knew I needed to go and visit the “God store” as I call it. It is really just Cornerstone Bookstore, a Christian bookstore. I was feeling the call to learn to be better at prayer so off I went [...]
September 11, 2008
Just when I was starting to think…..
Just when I was starting to think that maybe this was getting better I had a bad night again last night. My leg weakness had been getting progressively better and most of my weakness had been limited to my arms. I’m now having trouble doing things like washing my hair, stirring things, typing long things, [...]
