Category Archives: undiagnosed
It’s time!!
I think it’s time to revive this blog. It’s been quite awhile since I’ve written anything and I need to get back to it. I really like that it’s become a haven for those with low iron. I’m glad to … Continue reading
Filed under asthma, autoimmune, bipolar type 2, botox for migraines, grave's, headaches, iron deficiency, undiagnosed
Drum roll please……………..Celiac results
And they are……………………………………NEGATIVE. Told ya in the last post didn’t I???? I knew they would be too. Nothing is ever easily explained with me. When I started this medical mystery journey they were looking for myasthenia gravis because of my symptoms and … Continue reading
Filed under autoimmune, Celiac disease, grave's, iron deficiency, testing, undiagnosed
The Plan
Had my appt with the endocrinologist today. My TSH is still down. 0.27 this time. My T4 is down too. It sometimes is but not always. Not surprising they are down since I am still having symptoms. We talked of going on … Continue reading
Filed under Celiac disease, iron deficiency, testing, undiagnosed
Testing for Celiac
Thanks to Regina (who has been a wonderful resource for my commentors….thanks Regina!!!) I called my endocrinologist before my latest round of lab work and asked her about the connection between Celiac disease and the other problems I have been … Continue reading
Filed under autoimmune, Celiac disease, grave's, iron deficiency, testing, undiagnosed
I have a diagnosis finally!
I had a follow up appointment with my endocrinologist today for my hyperthyroidism. We were discussing how my symptoms had come back. The double vision, shortness of breath with any exertion, muscle weakness, etc. See this post for more on that. … Continue reading
Filed under grave's, iron deficiency, possible myasthenia gravis, testing, undiagnosed
Neurologist appointment update
I don’t think I ever updated about my most recent appointment with my neuro. It was on Sept 30. I had a sick kiddo at home and almost forgot the appt!! Luckily I had programmed it into my phone for … Continue reading
Filed under God, possible myasthenia gravis, testing, undiagnosed
Pulmonologist visit
Had my office visit with the pulm today. It was quite nice as he had cancelled all but myself and 2 other patients so we had plenty of time to chat. I know him quite well from work too so … Continue reading
Filed under testing, undiagnosed
Results are in
The latest battery of testing is done and I have results: The single fiber EMG was completely normal. According to the neurophysiologist that did it this definatively rules out MG along with the fact that my blood work for … Continue reading
Filed under autoimmune, God, grave's, possible myasthenia gravis, undiagnosed
Upcoming tests
My upcoming schedule is: Single fiber EMG on Thursday 9/18 (will be done by a muscular dystrophy specialist) High resolution chest CT on 9/19 Appt with pulmonologist on 9/26 Hopefully at least one of these will be able to … Continue reading
Filed under testing, undiagnosed
A sign sent
After reading some of the heavy topics on Without Wax, a blog I read daily, I knew I needed to go and visit the “God store” as I call it. It is really just Cornerstone Bookstore, a Christian bookstore. I … Continue reading
Filed under God, undiagnosed
